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Fall 2013 Issue of Generations
posted 11.19.2013

Person-centered care is acclaimed as a means and a goal to improve healthcare, health-related services, and social and community services for people of all ages. There is some agreement about the concepts and principles behind person-centered care, but translating these into practice has been slow, and barriers remain.

Over the past two decades, thinking about person-centered for people with dementia care has evolved. Still, many healthcare, social service, and other aging services network providers who work with people with dementia and know about person-centered care may not know what it means for people with dementia or why it is so important. Even providers familiar with dementia care may not understand how to implement person-centered dementia care.

In the Fall 2013 issue of Generations co-guest editor Katie Maslow provides an overview of person-centered care for all people and how it differs for people with dementia, and the context in which person-centered care for people with dementia is most likely to be implemented.

Co-guest editor Sam Fazio addresses the different conditions and diseases that cause dementia, how cognition is affected, and how it evolves over time. His article concentrates on how the person within remains consistent during these changes, and how person-centered care needs to support that core self.

Karen Love and Jackie Pinkowitz compare care that is person-centered with care that is not, and address consensus guidelines by dementia care experts. And Murna Downs details the person-centered care movement that began decades ago in the United Kingdom and what lessons have been learned from those years of research and practice.

The remainder of the issue takes on other practice-related issues, including assessment of values, preferences, and goals in the context of dementia, and the role of the family, the implications of race, ethnicity and culture, and the impact of the physical environment in person-centered dementia care. We are pleased to present this Fall 2013 issue focusing on person-centered care: it constitutes a mini-training course on defining and implementing care that puts the person—and their family—first. 

Inside this issue of Generations

Person-Centered Care: An Overview

Leaving the Farm
By Kathy Greenlee

Person-Centered Care for People with Dementia: Opportunities and Challenges
By Katie Maslow
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The Individual Is the Core—and Key—toPerson-Centered Care
By Sam Fazio
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Person-Centered Care for People with Dementia: A Theoretical and Conceptual Framework
By Karen Love and Jackie Pinkowitz
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Person-Centered Care in the Early Stages of Dementia: Honoring Individuals and Their Choices
By Carol J. Whitlatch

From Person-Centered Care to Relational-Centered Care
By Darby Morhardt and Marcia Spira

Improving Person-Centered Care Through Effective Design
By John Zeisel

Putting People—and Compassion—First: The United Kingdom’s Approach to Person-Centered Care for Individuals with Dementia
By Murna Downs
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Technology Can Enhance Quality-of-Life Assessment in Person-Centered Care
By Perry Edelman

Person-Centered Care for People in Different Stages of Dementia

Bringing Person-Centered Care to People with Early-Stage Alzheimer’s
By Benjamin T. Mast

Seeing the Person First: Living with Moderate-Stage Dementia
By Anna Ortigara and Rachel Scher McLean

Seeking a Better Way to Die with and from Dementia
By Daniel Kuhn

Person-Centered Care for People with Dementia who Live in Different Settings

Home Is Where the Heart Is—for People in all Stages of Dementia
By Elizabeth Gould and Paula Basta

The Care Manager Role in Person-Centered Care for People with Dementia
By Sheila L. Molony and Rayda Bouma

Remembering the Person in Person-Centered Residential Dementia Care
By Kate de Medeiros and Patrick J. Doyle

Person-Centered Care for People with Dementia in Medical Care Settings and During Care Transitions

Patient-Centered Care for People with Cognitive Impairment Is Possible in Primary Care
By Kenneth Brummel-Smith and Alexander “Sandy” Halperin

Getting to Yes, or How to Encourage Person-Centered Dementia Care in Hospitals
By Jan McGillick and Maggie Murphy-White

Dementia, Care Transitions, and Communication: Sharing Information Is Key to Patient-Centered Care
By Jeanne Heid-Grubman


From Concept to Practice: Training in Person-Centered Care for People with Dementia
By Katie Maslow, Sam Fazio, Anna Ortigara, Daniel Kuhn, and John Zeisel

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